Connecting You to Huntington's Disease Clinical Trials — At No Cost

Personalized matching to HD clinical and observational studies, guided by our HD research experts.

100% Free

Always. No fees, ever.

All HD Families

Gene-positive, negative, at-risk.

HSG Partnership

How We Connect You to HD Clinical Trials

Three simple steps. No fees. No pressure. Just real connections to the studies that may be right for you.

Clinical Trial Connection Designed Around You

2026 is shaping up to be a landmark year for Huntington’s disease research, with as many as five companies actively enrolling participants in the United States. The HD community has never had more opportunities to be part of progress — and our job is to make sure you don’t miss them. Our HD research experts help you understand what’s available, what each study involves, and which ones may be a fit for your situation — all at no cost, on your own timeline.

B.J. Viau (View) — Personally Guiding You Through HD Research

B.J. founded HD Genetics from a place of lived experience — and that same experience guides every Clinical Trial Connection conversation. Since his mother’s diagnosis with HD in 1995, B.J. has spent three decades inside the HD community, including 15+ years working in the pharmaceutical industry where he played a role in the launch of the first FDA-approved medicine for Huntington’s chorea.

What makes B.J. uniquely positioned to help connect you to research is that he has personally participated in multiple HD studies himself — including PREDICT-HD, PREVENT-HD, ENROLL-HD, and HD Clarity. He understands what enrollment feels like from the participant’s side: the questions you’ll have, the time commitment involved, the emotional considerations, and what to expect at study sites.

B.J. also serves as a trusted bridge between HD families and the pharma and biotech companies actively working on treatments — relationships built through his role at PatientViau and his decade of leadership on the HDYO Board. When you talk with B.J., you’re getting a participant’s perspective combined with deep knowledge of every company currently running HD trials.

Everything That's Included in Your Trial Connection

One free service. Five Full Benefits. No fees, no insurance billing, no obligation to participate in anything.

Initial Consultation

A free, no-pressure conversation to understand your situation, your goals, and your comfort level with research participation.

HD Research Education

Plain-language walkthrough of the current HD research landscape — clinical trials, observational studies, and what each one involves.

Personalized Trial Matching

We identify studies that may be a fit based on your location, health history, gene status, and personal preferences.

Direct Site Introductions

We connect you directly with research teams at study sites — no cold calls, no lost referrals, no navigating the system alone.

Ongoing Updates & Outreach

We will do the work to stay up to date on HD trials and reach out to you when new opportunities arise, so you can focus on living your life without worrying about missing an opportunity.

The Three Things HD Genetics Knows Better Than Anyone

Navigating HD research isn't just about lists of studies — it's about knowing what's enrolling right now, what each trial actually requires, and how to get you in front of the right people. That's what we do, all day, every day.

We Know What's Enrolling — Right Now

The HD clinical trial landscape changes constantly. Pharma and biotech companies open new studies, close enrollment, and shift recruitment criteria month to month. Through our partnership with the Huntington Study Group (HSG) and our direct relationships with sponsors, we know what's actively recruiting today, what's coming next month — and where, because the hardest part is sometimes finding the exact location.

We Know the Qualifications That Actually Matter

Every HD study has its own eligibility criteria — gene status, age, symptom stage, prior treatment history, geographic location, and more. We help you understand which trials you may qualify for before you spend hours filling out screening forms, so your time goes toward studies that are realistic possibilities.

We Have Real Relationships With Study Sites

HD Genetics works directly with clinical trial sites and coordinators across the country. When you're ready to explore a study, we don't hand you a website link — we make an introduction. That means faster responses, clearer next steps, and a personal connection from day one.

2026 — The Most Active Year in HD Research History

For decades, families affected by Huntington’s disease have waited for breakthroughs. In 2026, as many as five pharmaceutical and biotech companies are actively enrolling participants in HD clinical trials across the United States and Canada — alongside dozens of observational studies tracking the natural history of the disease. Every participant — whether gene-positive, gene-negative, or at-risk — contributes to research that could change the future for the entire HD community. Our role is to help you understand what’s available and connect you with the studies that fit your life.

What's Currently Enrolling Includes:

Disease-modifying therapy trials
Observational and natural history studies
Biomarker and early-detection research
Studies for pre-symptomatic gene carriers
Studies for gene-negative family members
Symptom management clinical trials

Specific studies change frequently. During your free consultation, B.J. will walk you through.

How HD Clinical Trial Connection Works

A simple, supportive process designed around you. There's no rush, no commitment, and no cost.

1. Fill Out the Intake Form

A short questionnaire to tell us a bit about your situation — gene status (if known), location, and your interests in HD research. Takes about 5 minutes.

2. Schedule a Call With Our Team

After your intake form, our team reaches out to find a time that works for you. You'll book a virtual phone or video conversation with our Genetics Team — no commitment, no cost.

3. Have a Conversation With HD Genetics

Meet virtually with B.J. Viau (View), our Founder and HD research expert

4. Get Customized Trial Connections

Based on your interests, location, and qualifications, we provide personalized connections to clinical and observational studies that may be a fit. Drawing on our partnership with the Huntington Study Group (HSG), we identify what's currently enrolling and what's coming soon.

5. Stay Connected as New Trials Emerge

HD Genetics is always here. As new trials open and the research landscape evolves, you can reach out anytime — and we'll proactively share new opportunities as they become relevant to your situation.

No rush, no commitment, no cost — ever. Our team is here whenever you're ready.

Understanding the Types of HD Studies

Not all research looks the same. Here are the main categories of HD studies you may be matched with — each with a different goal, time commitment, and level of involvement.

INTERVENTIONAL TRIALS

Disease-Modifying Therapy

Clinical trials testing whether new treatments can slow, halt, or reverse HD progression. Involve regular visits, monitoring, and sometimes a placebo group.

OBSERVATIONAL STUDIES

Natural History Tracking

No medication, no intervention. Researchers track how HD develops over time. Often the easiest way to contribute — sometimes just an annual visit or questionnaire.

BIOMARKER RESEARCH

Early Detection Studies

Researchers collect samples (blood, saliva, imaging) to identify biological markers that signal HD progression — often before symptoms appear.

SYMPTOM MANAGEMENT TRIALS

Symptom-Focused Treatment Studies

Clinical trials testing therapies designed to manage specific HD symptoms — such as chorea, mood changes, or cognitive challenges. Often involve participants who are already experiencing symptoms.

Whatever your situation, your counselor will walk you through which study types fit you best — and there's no obligation to enroll in any of them.

Is HD Clinical Trial Connection Right for You?

Our connection service is open to almost anyone touched by Huntington's disease.

You're a Good Fit If:

A Few Notes:

This service is completely free regardless of whether you decide to enroll in any study. There’s no obligation, ever.

Why This Service Is Always Free

A clinical trial connection service shouldn't have a paywall.

Funded by Mission, Not Fees

HD Genetics created this service because every person in an HD family deserves access to current research opportunities — regardless of their financial situation.

Powered by HSG Partnership

Our partnership with the Huntington Study Group gives us direct access to up-to-date study information, so we can connect you efficiently without intermediaries.

No Insurance, No Strings

We never bill insurance for this service, and there's no requirement to enroll in any study after our conversations. You're free to walk away at any point.

This service is a complement to — not a substitute for — direct clinical care. We work alongside HD Centers of Excellence, neurologists, and primary care teams.

HD Clinical Trial FAQs: What to Know Before You Connect

Quick answers to the most common questions about participating in Huntington's disease research — from what's involved to how your privacy is protected.

Do I need to be gene-positive to participate in HD research?

Most clinical studies require you to have undergone genetic testing to participate. That said, there are some observational studies that specifically look for gene-negative or at-risk individuals to take part. During your consultation, B.J. will walk you through what's currently enrolling and which studies, if any, may be a fit for your situation.

What's the time commitment for a clinical trial?

It varies by study. Some trials involve a handful of visits over several months, while others run longer with periodic check-ins. During your consultation, B.J. will walk you through the specific commitment of any study that may be a fit — so you have a clear picture before deciding anything.

Will trial information go on my medical record or be shared with insurance?

That depends on the specific study and how you choose to engage. Some research is conducted entirely outside of clinical care systems, while others integrate with your existing medical team. Our team can help guide you on this before anything would go on your record. During our consultation, we'll discuss your privacy preferences and help you understand the implications of each study before you commit to anything.

Do I have to travel to participate in HD research?

Every research study is conducted at a varying number of research clinics, so it's very dependent from study to study. Almost all clinical studies have budgets to cover the cost of travel to trial sites. Speak with our team to learn more about the travel involved for each study, and we'll help you identify the options that work best for your location.

What if I've already been tested through HD Genetics?

Wonderful — and your trial connection is even more straightforward, since we already know your gene status. You'll move directly from a brief intake conversation to discussing relevant studies. The Clinical Trial Connection service is open to all HD Genetics clients at no additional cost.