- Accessible · Confidential · Compassionate
Anonymous At-Home Huntington’s Disease Genetic Testing, Counseling, & Research
HD Genetics provides virtual, anonymous at-home Huntington’s disease genetic testing with pre-test and post-test genetic counseling, helping people make informed decisions in a private, supportive setting. For individuals already diagnosed with Huntington’s disease, HD Genetics also helps connect eligible participants with clinical research studies to advance HD knowledge.
Trusted by 1,500+ people across all 50 U.S. states.
1,500+
Clients Served Nationwide
All 50 States
100% Virtual Service
Founded by an HD Family
Personal experience drives our care
HIPAA-Compliant
Private & Confidential
Two Paths. One Mission: More Clarity, More Support, More Progress in Huntington’s Disease
Service 01
Anonymous Huntington's Disease Genetic Testing + Counseling
HD Genetics offers genetic testing and counseling for Huntington’s disease through a virtual, at-home process designed to protect privacy while giving individuals access to professional guidance before and after testing.
- Virtual genetic counseling sessions
- At-home saliva kit (same accuracy as a blood draw)
- Anonymous testing option (pseudonym available)
- Results never shared with insurance or added to your medical record
- Continued follow-up after results — at no extra cost
$750 all-in — covers counseling and lab testing.
Service 02
HD Clinical Trial Connection
For individuals already diagnosed with Huntington’s disease, HD Genetics helps connect people with HD clinical trial opportunities and research studies that may align with their diagnosis, location, stage, and eligibility factors.
- Education on clinical & observational studies
- Personalized trial matching based on your situation
- Direct introductions to local study sites
- Open to gene-positive, gene-negative, and at-risk individuals
- Powered by our partnership with the Huntington Study Group (HSG)
100% Free — Always.
No fees, no insurance billing, no obligation. Available in all 50 U.S. states.
Real Stories From People Exploring Huntington’s Disease Testing, Counseling, and Research
We liked that it was anonymous and everything could be completed remotely.
This was one of the more nerve wracking experiences of my life but I felt supported the entire time.
HD Genetics has provided so much support to and for my family in our HD Journey.
I received reassurance and support throughout my journey.
I don't know if I could have done it without Wes and HD Genetics.
Why HD Genetics Exists for the Huntington’s Disease Community
Private Access to Huntington’s Disease Genetic Testing
For people with a family history of Huntington’s disease, predictive genetic testing can feel deeply personal. HD Genetics offers anonymous, virtual at-home HD genetic testing with counseling support, giving individuals a private way to explore their genetic risk.
Genetic Counseling Before and After Results
HD genetic testing is more than a lab result. HD Genetics includes pre-test and post-test counseling to help individuals understand what testing may reveal, what results may mean, and how to consider next steps with support. To learn more about the mission behind the organization, visit About HD Genetics.
Education for Families, Caregivers, and At-Risk Individuals
HD Genetics also provides HD education and Huntington’s disease resources for individuals, families, and caregivers seeking clearer information about HD symptoms, inheritance, genetic risk, counseling, and clinical research.
Reducing Financial Barriers to HD Genetic Testing
Through a partnership with Help4HD, financial aid is available for individuals who qualify, helping make anonymous Huntington’s disease genetic testing and counseling more accessible. HD Genetics believes cost should never be the reason someone goes without the opportunity to better understand their HD risk.
How HD Genetic Testing Works
1. Intake Form and Welcome Call
A 5-minute form, then our team reaches out to introduce ourselves and answer your initial questions.
2. No-Cost Genetic Counseling Session
Meet virtually with Wes Solem, ScM, CGC. Ask anything — you only pay if you decide to move forward with testing.
3. At-Home Saliva Kit
You will be mailed a kit from our partner laboratory to provide your DNA saliva sample. FedEx return label is provided. No Needles, no lab visits.
4. Results Disclosure Visit
Receive your results from Wes in a private, unrushed video session, with a written report and HD resource guide.
5. Lifetime Follow-Up
Continued access to our team at no additional cost — for clinical care, research, and community connections.
How HD Clinical Trial Connection Works
1. Fill Out the Intake Form
A short questionnaire to tell us a bit about your situation — gene status (if known), location, and your interests in HD research. Takes about 5 minutes.
2. Schedule a Call With Our Team
After your intake form, our team reaches out to find a time that works for you. You'll book a virtual phone or video conversation with our Genetics Team — no commitment, no cost.
3. Have a Conversation With HD Genetics
Meet virtually with B.J. Viau (View), our Founder and HD research expert
4. Get Customized Trial Connections
Based on your interests, location, and qualifications, we provide personalized connections to clinical and observational studies that may be a fit. Drawing on our partnership with the Huntington Study Group (HSG), we identify what's currently enrolling and what's coming soon.
5. Stay Connected as New Trials Emerge
HD Genetics is always here. As new trials open and the research landscape evolves, you can reach out anytime — and we'll proactively share new opportunities as they become relevant to your situation.
- Our Founder
B.J. Viau (View)
Founder of HD Genetics.
For 30 years, since my Mom was diagnosed with HD, I’ve done everything I could to support the HD community. I know I won’t develop symptoms for HD in the future, but many of my friends will unless something is done about it. HD Genetics’ services are my attempt to do something about it. I created HD Genetics to make sure everyone who underwent genetic testing received the best possible experience from start to finish – regardless of where they lived, and after testing they had the knowledge and connections to participate in what could be a life saving research study. I look forward to empowering every single person who is in need!
Frequently Asked Questions About HD Genetics, HD Testing, and Clinical Trials
Our all-in fee is $750, which covers everything: lab testing through our partner laboratory, all genetic counseling sessions (before and after), your written results, and lifetime follow-up access to our team. There are no hidden fees and no add-ons.
If $750 is a barrier, our partnership with Help4HD International provides financial aid. To date, no one has been turned away due to inability to pay.
Yes. Our at-home saliva test is just as accurate as a traditional blood draw for detecting the HD gene. Both methods analyze the same DNA and measure the CAG repeat count with the same reliability. The only difference is convenience — saliva collection can be done from the comfort of your home, with no needles and no lab visit. Just provide a sample, seal the kit, and send it back with the pre-paid return label we provide.
Yes. You can use a pseudonym (a fake name) throughout the entire process if privacy is your priority. We'll walk you through what anonymous testing means, the trade-offs to consider, and how to choose the path that's right for your situation.
Your results are never automatically added to your medical record and are never shared with your insurance company.
Most clients receive their results within 30 to 45 days from the time they submit the intake form. The exact timeline depends on your pace — we never rush the process.
You can move faster if you're ready, or take more time between steps if you need it.
We do not bill insurance directly — and that's intentional. By keeping insurance out of the process, your testing remains private and never appears in your insurance records.
We accept payment via debit/credit cards, HSA/FSA cards, and money orders. If you'd like to submit a receipt to your insurance for possible reimbursement after testing, we can provide guidance.
Your main point of contact is Wes Solem, ScM, CGC — our Director of Genetics and a Certified Genetic Counselor through the American Board of Genetic Counseling. Wes earned his Master of Science in Genetic Counseling from Johns Hopkins University and has personally guided more than 1,500 people through HD genetic testing.
You'll meet with Wes in every counseling session, from your first conversation through your results disclosure.