At-Home Huntington's Disease Genetic Testing & Counseling

Compassionate, virtual care from a team of HD family members and certified genetic counselors. Empowering each person throughout their HD journey — from the comfort of home.

Trusted by 1,500+ people across all 50 U.S. states.

1,500+

Clients Served Nationwide

All 50 States

100% Virtual Service

Founded by an HD Family

Personal experience drives our care

HIPAA-Compliant

Private & Confidential

Two Services. One Passion.

We focus exclusively on the Huntington's disease community — with two purpose-built services to support you wherever you are on your HD journey.

Service 01

Huntington's Disease Genetic Testing & Counseling

A complete, at-home testing experience — built for privacy, dignity, and peace of mind. From your first counseling session to your results disclosure, you're guided by a Certified Genetic Counselor who specializes in HD.

Virtual genetic counseling sessions
At-home saliva kit (same accuracy as a blood draw)
Anonymous testing option (pseudonym available)
Results never shared with insurance or added to your medical record
Continued follow-up after results — at no extra cost

$750 all-in — covers counseling and lab testing.

Financial aid available through Help4HD. To date, no client has been turned away due to inability to pay.

Service 02

HD Clinical Trial Connection

2026 is shaping up to be a landmark year for HD research, with as many as five companies enrolling participants in the U.S. Our team helps you understand your options and connects you directly to study sites that may be a fit.

Education on clinical & observational studies
Personalized trial matching based on your situation
Direct introductions to local study sites
Open to gene-positive, gene-negative, and at-risk individuals
Powered by our partnership with the Huntington Study Group (HSG)

100% Free — Always.

No fees, no insurance billing, no obligation. Available in all 50 U.S. states.

Words From the People We've Walked With

Honest reflections from clients who trusted us with one of the most personal decisions of their lives.

They gave me the confidence to move forward with things on my own time and from the comfort of my own home.

“My experience with HD Genetics was amazing. I had put off testing due to the fear of the lengthy process I had heard it was when doing the blood test. I had already been familiar with the disease and didn’t want to prolong my results any longer than I already had. Wes was very friendly and knowledgeable. He answered every question I had thoroughly and I felt supported the entire time. The results appointment was much anticipated and he was able to get straight to the point. I am very lucky to have tested negative, but I firmly believe I couldn’t have made it to this point without HD Genetics. They gave me the confidence to move forward with things on my own time and from the comfort of my own home.”

Once I discovered that anonymous testing was even possible, they became the obvious choice.

“I am so grateful for the services of HD Genetics. The period between knowing I might have HD and getting my results was one of the most difficult of my lifetime — for me and my family. There was the uncertainty of the future and also the tendency to imagine the worst. During this trying time, my experience with HD Genetics was a bright spot. Once I discovered that anonymous testing was even possible, they became the obvious choice due to both the cost and the seriousness of their enterprise (even my local HD Center of Excellence supported the decision). The website and materials were incredibly clear about the services offered and the process. There were no surprises. The staff were a fount of knowledge and incredibly professional. Having the testing and results process be easy, transparent, and affordable was the greatest gift. Thank you for making this service available and for supporting the HD community.”

I don't know if I could have done it without Wes and HD Genetics.

“This was one of the hardest decisions I’ve ever had to make and I don’t know if I could have done it without Wes and HD Genetics. I am so grateful I found them through a Huntington’s thread on Reddit! Thank you all so much for the resources and support!”

I was working with people who have experience with Huntington's disease rather than a generic doctor.

“Getting tested through HD Genetics made me confident I was getting the right answers and resources for any questions I might have. It also made me feel more comfortable and more supported getting tested, knowing I was working with people who have experience with Huntington’s disease rather than a generic doctor.”

Reasonably priced and private testing is a godsend for many.

“The availability of reasonably priced (with the possibility of financial assistance) and private testing is a godsend for many. The testing process was quick, smooth, and thorough. Wes is extremely knowledgeable and I learned a lot about resources I didn’t know were available to those affected by HD along with some things about HD.”

Why People Choose HD Genetics

Privacy First

Your results never appear on your medical record and are never shared with your insurance company. Use a pseudonym if you prefer full anonymity.

Built for Convenience

100% virtual care with a saliva kit shipped directly to your door. No clinics, no travel, no waiting rooms — and no doctor's office required.

Genuine Compassion

Our team includes HD family members who understand the emotional weight of this process. You'll never feel rushed, judged, or processed.

No Financial Barriers

Through our partnership with Help4HD, financial aid is available for anyone who qualifies. Cost should never be the reason someone goes without testing.

How HD Genetic Testing Works

~30–45 days · $750 all-in · Financial aid available

1. Intake Form and Welcome Call

A 5-minute form, then our team reaches out to introduce ourselves and answer your initial questions.

2. No-Cost Genetic Counseling Session

Meet virtually with Wes Solem, ScM, CGC. Ask anything — you only pay if you decide to move forward with testing.

3. At-Home Saliva Kit

You will be mailed a kit from our partner laboratory to provide your DNA saliva sample. FedEx return label is provided. No Needles, no lab visits.

4. Results Disclosure Visit

Receive your results from Wes in a private, unrushed video session, with a written report and HD resource guide.

5. Lifetime Follow-Up

Continued access to our team at no additional cost — for clinical care, research, and community connections.

How HD Clinical Trial Connection Works

100% Free · Open to anyone in an HD family · No timeline pressure

1. Fill Out the Intake Form

A short questionnaire to tell us a bit about your situation — gene status (if known), location, and your interests in HD research. Takes about 5 minutes.

2. Schedule a Call With Our Team

After your intake form, our team reaches out to find a time that works for you. You'll book a virtual phone or video conversation with our Genetics Team — no commitment, no cost.

3. Have a Conversation With HD Genetics

Meet virtually with B.J. Viau (View), our Founder and HD research expert

4. Get Customized Trial Connections

Based on your interests, location, and qualifications, we provide personalized connections to clinical and observational studies that may be a fit. Drawing on our partnership with the Huntington Study Group (HSG), we identify what's currently enrolling and what's coming soon.

5. Stay Connected as New Trials Emerge

HD Genetics is always here. As new trials open and the research landscape evolves, you can reach out anytime — and we'll proactively share new opportunities as they become relevant to your situation.

B.J. Viau (View)

Founder of HD Genetics.

For 30 years, since my Mom was diagnosed with HD, I’ve done everything I could to support the HD community. I know I won’t develop symptoms for HD in the future, but many of my friends will unless something is done about it. HD Genetics’ services are my attempt to do something about it. I created HD Genetics to make sure everyone who underwent genetic testing received the best possible experience from start to finish – regardless of where they lived, and after testing they had the knowledge and connections to participate in what could be a life saving research study. I look forward to empowering every single person who is in need!

Frequently Asked Questions

We know HD genetic testing comes with a lot of considerations — practical, financial, and emotional. Here are quick answers to what people most often ask before getting started.

How much does HD genetic testing cost?

Our all-in fee is $750, which covers everything: lab testing through our partner laboratory, all genetic counseling sessions (before and after), your written results, and lifetime follow-up access to our team. There are no hidden fees and no add-ons.

If $750 is a barrier, our partnership with Help4HD International provides financial aid. To date, no one has been turned away due to inability to pay.

Is the saliva test as accurate as a blood test?

Yes. Our at-home saliva test is just as accurate as a traditional blood draw for detecting the HD gene. Both methods analyze the same DNA and measure the CAG repeat count with the same reliability. The only difference is convenience — saliva collection can be done from the comfort of your home, with no needles and no lab visit. Just provide a sample, seal the kit, and send it back with the pre-paid return label we provide.

Can I really test anonymously?

Yes. You can use a pseudonym (a fake name) throughout the entire process if privacy is your priority. We'll walk you through what anonymous testing means, the trade-offs to consider, and how to choose the path that's right for your situation.

Your results are never automatically added to your medical record and are never shared with your insurance company.

How long does the entire process take?

Most clients receive their results within 30 to 45 days from the time they submit the intake form. The exact timeline depends on your pace — we never rush the process.

You can move faster if you're ready, or take more time between steps if you need it.

Do you accept insurance?

We do not bill insurance directly — and that's intentional. By keeping insurance out of the process, your testing remains private and never appears in your insurance records.

We accept payment via debit/credit cards, HSA/FSA cards, and money orders. If you'd like to submit a receipt to your insurance for possible reimbursement after testing, we can provide guidance.

Who will I work with throughout the process?

Your main point of contact is Wes Solem, ScM, CGC — our Director of Genetics and a Certified Genetic Counselor through the American Board of Genetic Counseling. Wes earned his Master of Science in Genetic Counseling from Johns Hopkins University and has personally guided more than 1,500 people through HD genetic testing.

You'll meet with Wes in every counseling session, from your first conversation through your results disclosure.