Genetic testing HD is a deeply personal decision that requires informed consent – which is typically reserved for adults under HD genetic counseling protocols. This standard is in place to protect minors, and/or their parents, from making a life-changing decision before they’re developmentally ready to fully understand and process the result.

If you have a unique circumstance involving a child you suspect may have juvenile HD, please reach out to discuss.

One day in the future, when disease modifying therapies are available, we believe that testing below the age of 18 years old will not only be the norm, but it will be encouraged, so those with the genetic mutation can take a medication to prevent, delay, stop symptoms from ever starting later in their life. We aren’t near that time yet, but one day that is our hope!